Kevin Bristow's page

Created by Kathryn

Kevin's updates

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13/10/2019

Update

Kevin was well enough to return to Agnes Court on Saturday. He seems to have settled back in and we ...just hope he manages to stay well now. He gave us all a bit of a fright but according to the Doctors at the Horton Hospital he is strong which helped him to fight the sepsis off. He was back to talking all day and making sure no one could pass him without having a chat. Unfortunately his illness has had a detrimental effect on his cognition with his speech in particular very unclear. Agnes Court have a physio plan for him and we hope that his speech will improve now that he has more people to speak to.Read moreless

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01/10/2019

Update

Kevin remains in hospital in Banbury. One of his doctors told us that the infection is now cleared ...and his course of antibiotics finished yesterday. He is terribly tired and we generally find him asleep when we visit. Doctors tell us this is usual for someone who has fought such a major infection. It seems likely that Kevin will stay in hospital for at least another week, possibly two. The hospital staff are now going to concentrate on his rehabilitation to get him back to where he was before he landed in hospital. Physios, occupational and speech/language therapists are going to mobilise him and get him eating again.Read moreless

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27/09/2019

Update

Unfortunately this Monday Kevin was hospitalised again. He had a bad urine infection which turned in...to sepsis very rapidly. He was treated initially in A&E at the Horton hospital in Banbury and was then moved to Critical Care with fabulous one on one nursing care. Luckily he’s made of stern stuff and has pulled through with the help of a lot of antibiotics and a blood transfusion but he was seriously ill with blood pressure so low they worried his heart may stop. This afternoon he was moved to a normal medical ward but will remain in hospital for a few days yet. He’s really tired and groggy but seems to be on the mend.Read moreless

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06/09/2019

Update

Yesterday Kevin moved from the OCE in Headington Oxford to a nursing home in Banbury. This move has ...been a long time coming, it was May when we were first told Kevin was being discharged, obtaining ongoing care funding and then finding a suitable place for him has taken a long time. Any way he was happy to be moving to Banbury and seemed to be enjoying the change in scenery when Liz and I followed him there yesterday. We hope that different stimulus and a more home like environment will help him to continue to progress. In the last few weeks Kevin’s speech has become much clearer making it easier for us to understand him and therefore frustrating him less. He has amazed me recently when he showed how well he could remember things pre accident such as counting to 20 in French. When he arrived at Banbury yesterday he was able to give the staff details they needed about him such as his height, weight, address, etc. In fact when he told them his weight it showed an improvement in his short term memory as he said 10 stone which is about right, a weight he never was pre accident.Read moreless

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02/08/2019

Update

There isn’t much news to update you with at the moment. It was Kevin’s birthday on Tuesday and he en...joyed being made a fuss of by his family and the staff at the OCE. His progress seems static at present, he has times of real clarity and it is lovely to be with him then but he can get agitated at times probably out of frustration. He wanted me to saw the arms off his chair the other day and was quite annoyed that I didn’t have a saw in my bag! We are still waiting for a suitable nursing home to be found for him to move to but it seems they are few and far between for younger people - not often we get termed young in our 50s! In the meantime we are happy that he remains at the OCE as they are looking after him fantastically well and he seems relatively happy there.Read moreless
03/08/2019

Elaine Kidd Hello Kathy. Thanks for the update. Kevin and you are often in my thoughts.

Jon Newlyn

20/07/2019

Hi Kevin, Only just heard, I'm so …

Aidan Shutter

10/04/2019

Fantastic to hear about the good pr …

Rob Young

03/04/2019

Its great to hear about the progres …

16/07/2019

Update

Apologies for the lack of updates, it’s been business as usual over the last few weeks. On the plus ...side Kevin has been interacting more with other patients as he’s been included in group activities such as painting and conducting an orchestra which he has enjoyed. He has also progressed with drinking as now has liquid that is only slightly thickened as long as he is concentrating. On the other hand, he has been more agitated but his team believe this is because he has more awareness of his situation. He doesn’t like not being able to get out of his chair when he wants and gets very frustrated if I don’t understand what he is saying. We are still waiting to hear where he will be moving to next but I get the impression this may be imminent now as he has been at the OCE for 6 months which is the maximum length of stay allowed. Read moreless

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22/06/2019

Update

This week has been a busy and anxious week as we had Kevin’s funding meeting. This was fairly crucia...l as Kevin would either continue to be fully funded by the NHS or we would be means tested and potentially be paying towards his social care. The brilliant team at the OCE put a good case forward and were able to prove that he has primary healthcare needs meaning NHS continuing healthcare has been agreed, we are just waiting for the written confirmation but fingers crossed it should all go through. This will mean that his move from the OCE will get underway. Yesterday Kevin had a banana milkshake, which is the most liquid drink he’s had so far and he swallowed it really well so he can now continue with this over the weekend with the nursing staff. He loved it as you can imagine.Read moreless
22/06/2019

Sam Breese That’s great news

10/06/2019

Update

Kevin’s swallow has improved enough for him to have full portions of food now, still puréed. Today I... saw him walk with the Physios and he seemed far more balanced with his upper body not leaning back as much as he used to. His nurses are more confident to transfer him from chair to bed by standing and pivoting him which is far more dignified than being hoisted. I also wanted to share with you all that Kevin’s mum and dad ran a coffee morning to raise money for the OCE as a thank you for the amazing care they have given Kevin. Thanks to everyone that helped at and supported the event, they raised an amazing £1090. This money has been given to the OCE and will be used for the patients such as gardening equipment. Well done to everyone involved I can’t believe your generosity.Read moreless

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01/06/2019

Update

In the last week the amount of food Kevin is able to have has increased and he is now able to have u...p to a full portion, puréed still though. The next step is to try him with fluids. The hand surgeon visited Kevin again on Wednesday to reassess if surgery will be beneficial. I was able to be there so got the feedback directly from the surgeon. Unfortunately there is not much that can be done with the right hand due to nerve damage in the lower arm caused by the open fracture Kevin sustained in the accident. The best the surgeon could do is to remove the knuckles and fuse the fingers giving Kevin just a bit more range but no more flexibility. The left hand is the one to concentrate on and the surgeon felt confident this can be improved but not with surgery at the moment, splinting and Botox should help get more use of this hand he feels. Sounds like Kevin is going to have to learn to be left handed! Otherwise I t’s been an up and down week as Kevin has been uncomfortable with his catheter which, understandably, has made him quite grumpy. Read moreless
10/06/2019

Elaine Kidd SO good to read that Kevin is making some progress. Eating more interesting food ! I do hope he can become left handed, as his right hand is so damaged. Thinking of you both . Elaine and Alan.

02/06/2019

Patrick Voss Keep up the dedicated support that you are giving him, Kathryn !

02/06/2019

Patrick Voss We are patiently waiting to order that Chinese take away for us all.

01/06/2019

Patrick Voss Please tell him that Eileen and I wish him continued progress - and he should keep fighting to help make all his functions return.

01/06/2019

Patrick Voss It is great to see your updates on Kevin's progress.

22/05/2019

Update

Today Kevin’s speech and occupational therapists, Ang and Hayley, and I took Kevin to the cafe in th...e main hospital building. They bought him a hot chocolate which they thickened up to a yogurt consistency. He loved it as it was chocolatey and sweet. They wanted to see how he coped in a busy environment so that I can bring him over myself in the future. He loved being nosey and people watched as he would always have done previously. His speech was much clearer today and I was able to understand him much better, especially when he called me a silly sod!Read moreless
23/05/2019

Sam Breese Good to hear he is making progress

21/05/2019

Update

In the last few days Kevin has started to be able to have small puréed meals which must be amazing f...or him. He has had beef stew and mash and liver, bacon and mash which he said was lovely. The thing he enjoys the most us the Cadbury chocolate pots that I take in for him - he is a chocoholic after all! Yesterday Kevin had his eyesight check and this really highlighted how far he has progressed as last time, probably 3 months ago, he couldn’t communicate what he was seeing so the Dr had to use other means to determine what he could see. This time though she showed him letters and he was able to say what they were, until they got too small for him to see of course. She checked his colour sight as I was worried that he may not see certain colours and that seemed fine, it seems he may just have trouble articulating the right colour when asked which is good to know. Read moreless

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09/05/2019

Update

For the first time yesterday Kevin had some Ready Brek with honey which he managed to swallow quite ...well. He is now allowed to have up to 3 small portions of puréed food a day from trained nurses. This is a positive step in the right direction towards being able to eat again, still no liquid though as this can easily go in to his lungs. His Doctor has requested he be seen again by the hand surgeon to consider improving the movement in his right hand as this is now holding him back with his walking as he can’t hold a frame or stick to support himself. Read moreless
09/05/2019

Elaine Kidd It must be lovely to have real food after so long.

03/05/2019

Update

Today marked 6 whole months since Kevin’s accident on 3rd November. He celebrated the occasion by ge...tting himself out of bed again. When I arrived at lunchtime there were about 8 nurses, Doctors, etc, in his room with him centre of attention lying on the floor trying to look cool. Luckily unhurt he is probably going to now have to have someone with him at all times when he’s in bed. Once back in bed he immediately fell asleep having to be woken 10 minutes later for a physio session which he was less than enthusiastic about doing. Despite his lack of enthusiasm he walked fairly well and did some good work on rolling on to his stomach and then up on to his knees with assistance. Positive news that his physio has now given permission for the nursing staff to do standing transfers from bed to chair without using the hoist. He is also allowed 3 yogurts a day now and I am taking him in chocolate pots which he loves.Read moreless
09/05/2019

Elaine Kidd Amazing that it is 6 months Katie. What a long haul for him, his carers and you. Good to read he is making some progress with his physio, but climbing out of bed without assistance is not a good idea...

26/04/2019

Update

The nurses told me that Kevin managed to get himself out of bed in the middle of the night, early ho...urs of Thursday morning. I’m actually surprised that it has taken him this long as even when he arrived at the OCE the staff were concerned this could happen. No harm done as there are always crash mats around the bed which is kept low just in case. Someone found him pretty quickly and put him back to bed. Guess this may be an ongoing problem now! I saw Kevin walk today and it was much better, he concentrated better and was much straighter, more upright and not tripping over his own feet. His speech was also clearer today which made it easier to get what he was saying. On the downside he was very grumpy when I arrived and ordered me about - wanted to be taken in the garden then immediately back in when he realised it wasn’t that warm.Read moreless
30/04/2019

Patrick Voss Eileen and I are following your Update messages regularly. We wish you both encouragement and patience in the slow process of recovery. We need the muscle nerves in his neck to mend and allow him to speak, swallow and breath more comfortably. Good luck in researching a suitable interim home for Kevin not too far from Longwick. Keep working for the future, Lots of love, Pat and Eileen.

30/04/2019

Patrick Voss Hello again Kathryn and Kevin,

27/04/2019

Elaine Kidd Kathy. Have managed to use the link again. Quite a bit to catch up with on news of Kevin. . Now the challenge of finding somewhere nearby and safe for Kevin, that will meet his needs. There are some positives in your posts which is encouraging. Thinking of you both very often. Elaine and Alan

25/04/2019

Update

Since returning to the OCE after having his feeding tube replaced last Tuesday things have returned ...to normal for Kevin. He had a few days where he was very tired due to lack of energy but is fine now. He is currently very distracted when having his therapy sessions, too busy being nosey or talking too much to concentrate. This makes it difficult for the team as he doesn’t look where he’s going when walking and doesn’t think about swallowing when eating yogurt. On the positive side he’s doing more with his hands such as holding a racquet and hitting a soft ball. He recognises friends and family and can name them all but struggles to do this with anyone he’s met since his accident such as his nurses and therapists. We had Kevin’s progress meeting this week and whilst he has improved massively since the last meeting 6 weeks ago, his cognitive ability has remained static. He doesn’t have the awareness of his situation which is what would push him forward - we all know what a determined character Kevin is and once he recognises he needs to help himself get better that will help massively. At the moment he is more likely to say no when asked to walk meaning time is lost in his sessions cajoling him. We have been told that his discharge from the OCE will happen sometime in May/beginning of June so the next chapter of the journey starts with us trying to find the right place for him to go next. Read moreless

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15/04/2019

Update

Kevin is having a little holiday at the JR. Friday night he managed to pull his feeding tube out, we...’re not too sure of the circumstances. To have it reinserted he came to the JR Sunday pm. Apparently he is due to have the procedure done today so hopefully will be back to the OCE tomorrow. He seems blissfully unaware of what’s going on and within 10 minutes of me getting here has nodded off! He obviously hasn’t had any food or drugs for 3 days now so it’s important it’s done sooner rather than later.Read moreless

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12/04/2019

Update

Yesterday Kevin ate a whole pot of yogurt which is the most he has ever eaten since his accident. Wh...en I said to him that it was great that Ang told me he had yogurt for lunch he said “did I”! Bearing in mind that was apparently only an hour previously this shows where his short term memory is currently. I also saw Kevin walk with his Physios and it was the best I had seen, much more upright and less leaning all his weight on them. I caught up with his Doctor too and he is extremely pleased with Kevin’s progress which gives me hope that he will be able to stay at the OCE longer which will give him the best possible chance of recovery, fingers crossed.Read moreless
12/04/2019

Chris McDonnell Great progress Katherine. We hope he can stay longer.

09/04/2019

Update

Kevin is on good form today and concentrated really well when Hayley, his Occupational therapist, wa...s looking at his photo book with him. It was the most focused I’ve seen him and he seemed to remember climbing ladders in Mesa Verde only a couple of weeks before his accident - he told Hayley I made him do it and it was scary!Read moreless
10/04/2019

Liz Bristow Another step forward Kathryn, we look forward to seeing him on Sunday x

10/04/2019

Patrick Voss Excellent to hear that such positive progress is happening . Keep up the good work! We would hope to visit in the near future. I will talk to you, Kathryn, to agree a date. Maybe bring a take away ? ! ! Pat and Eileen xx

10/04/2019

Patrick Voss Hello Kevin and Kathryn,

2

10/04/2019

Patrick Voss HELLO kEVIN AND kATHRYN,

10/04/2019

Sam Breese Great to hear

03/04/2019

Update

Sorry for the lack of updates, last week Kevin had a bit of a set back as he became quite wheezy and... asthmatic, having to be prescribed with a nebuliser. That’s back under control now which is good news. Yesterday my brother Keith visited Kevin with me. He recognised Keith straight away and was on good form, making us laugh because he quite clearly swore a couple of times! He told us that he would struggle to ride his bikes or drive his car with his right hand as it is currently. For info, his fingers curled inwards and have been left pretty fixed to his palm as the tendons have shortened. This was mainly due to inactivity as he broke his right wrist in the accident. Anyway, yesterday he seemed keen for us to try to help straighten them but swore loudly when it hurt to do so. It is great that he is now thinking about the future and knowing Kevin he will now be trying to get those fingers moving. Unfortunately I still struggle to understand what he is saying a lot of the time which must be very frustrating for Kevin and he tells me I’m annoying when I can’t which he manages to say very clearly!Read moreless

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26/03/2019

Update

Last week Kevin increased the amount of walking he could do and ended the week doing 6 laps of the g...ym and even going outside in the corridor too. It is lovely that he is recognising people that visit and was able to name his family when they all visited Sunday. His shorter term memory isn’t so good at the moment so he couldn’t tell me who he had seen on Sunday though. Last week his speech & language therapist gave him more yogurt to test his swallow reflex which is improving however he is much more chesty now and is needing an asthma inhaler to help him breath more comfortably. She has decided to leave testing the swallow for a little while. Kevin was also fitted with a proper wheelchair so he is now more manoeuvreable and we will be able to take him outside in the garden. Good timing with the nice weather this week.Read moreless

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Steve Burns

22/03/2019

So So pleased at the progress that …

Patrick Voss

21/03/2019

Hello Kevin and Kathryn Keep up th …

Paul Treleaven

16/03/2019

It is encouraging to hear the updat …

15/03/2019

Update

This week Kevin has improved massively in how he communicates. All of a sudden he is showing real un...derstanding and is able to get across what he wants. So today he wanted to go outside and he was cold so wanted his fleece on. He recognised Mike who visited with me today and said “it’s good to see you Mike”. It’s not always easy to understand what he is saying but at least we can now ask questions to get to what he means.Read moreless
18/03/2019

Elaine Kidd Really positive to read this update. It must be such a relief to both Kevin and those visiting him.

16/03/2019

Liz Bristow Such great news, can't wait to see him tomorrow!

13/03/2019

Update

Today Kevin was given some strawberry yogurt and he managed to swallow it fairly successfully which ...is another step forward. His swallow is still slow and he has to swallow more than once to get the yogurt to go down but it appears to have gone into his stomach rather than his airway. He was also very talkative today and it was nice to see him showing an interest with his speech & language therapist when she talked to him about the Isle of Man TT race. Read moreless
14/03/2019

Chris McDonnell Fantastic! That is such a step forward. Love from Chris & John

14/03/2019

Frankie Styles Such a great idea and so pleased to hear that Kevin is progressing so well now. Love to you all

07/03/2019

Update

Today I saw Kevin walk for myself which after 124 days in hospital was amazing. He was quite talkat...ive although we had a problem understanding what he was saying some of the time which frustrated him a bit.Read moreless
11/03/2019

Sam Breese That is excellent news , great progress

11/03/2019

mark moore Hi This is great news, Often in our thoughts and missed on a Saturday, Mark

10/03/2019

Peter Gange Hi Kathryn fab idea great news on the old bugger went to see him a week last Friday as its POETS day but the traffic backed all the way back to Wheatley so i am back to late Mondays so see him tomorrow

08/03/2019

Diane Hazleton Its great to read about Kevin's progress, and lovely to see you when you walk passed Kathryn. Your both always in our thoughts Love to to you both

08/03/2019

martine Tim Wardill Liz just passed us the details of the website and it is fantastic to read the fantastic positive news of yesterday! The journey to recovery might be quicker than expected! thinking of you all. Martine & Tim

08/03/2019

Alan Thomas Thank you for setting this up. It's a great way to share the good news of Kevin's progress and I wish you and yours all the very best.

08/03/2019

Alan Thomas Hello Kathryn, I just signed up to callingabout.org after hearing about the page that you have set up for Kevin (what a great organisation!).I was really really happy to read the latest update, which is so so much better news than I could have hoped for.

07/03/2019

Nataha Garrad That's fantastic news.

06/03/2019

Update

On Tuesday Malcolm, Liz, myself and my Dad attended Kevin's monthly progress meeting with everyone i...nvolved in his rehabilitation (therapists, nurses and his Consultant, Dr Pick). This meeting was far more positive than the initial one as Kevin has made good progress which everyone has witnessed. As a result of his progress the OCE have extended his stay to 9th May which is a real result. The longer he can stay there the better as their care and therapy are what is helping him to get better. Today was an amazing day. Jenny, Kevin's Physio, told me that he walked for the first time today. Not just a few steps either, he walked the length of the gym and back - obviously he was supported by a Physio either side of him but even so this is a fabulous breakthrough. I just wish I had been able to witness it.Read moreless
07/03/2019

Elaine Kidd It was really good to read this latest report and clearly Kevin is making a huge effort to walk again. In our thoughts as always. Elaine and Alan

03/03/2019

Update

W/c 25th February was slightly less positive than the previous week and Kevin has been very tired, s...pending quite a lot of time sleeping which is not great for his visitors! None of us heard him speak very much even when he was doing physio which tends to be when he is at his most talkative. On the positive side he has managed to stand with support for up to 30 mins at a time. The nurses also told me he managed to sit himself on the edge of the bed ready to be put in his chair, which is amazing as he usually cannot sit up when in bed.Read moreless
08/03/2019

Diane Hazleton They say from Little acorns. x x

25/02/2019

Update

Kevin had a really good week last week (wc 18th Feb). The physios reported that he was speaking more..., he was sitting and standing with their support and managed to push the right button in the lift when asked. He went out in the garden in the sun for the first time too. I heard Kevin say hello to one of the physios and the nurses all said he was saying words to them.Read moreless

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